The mission of the JLK Sanfilippo Research Foundation is to create awareness of this very rare genetic syndrome and to raise funds to help support private companies and non-profit organizations in their quest to develop therapies that will combat Sanfilippo Syndrome.
We became a non-profit in August of 2006.
Sanfilippo Research Foundation
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WCVB VideoThree daughters with Sanfilippo type C
To donate by check:
Make the check payable to
JLK Sanfilippo Research Foundation and Mail to
Go To the Research Button for the latest update on the research.
JLK Sanfilippo Research Foundation
P.O. Box 564
Belmont, MA 02478
21st Annual AN RAS MOR 5 K Road Race
Sunday, March 25, 2018
Start Time 9:30
Register Now! firstname.lastname@example.org
$40 March 1 to Race Day if Available
The Somerville Road Runners have been strong and loyal supporters of our foundation. A portion of the entry fee will go to JLK to fund research. You are also provided with an opportunity to make a personal donation to our cause when you register.
When shopping on Amazon, go to Amazon smile and type in JLK Sanfilippo Research Foundation as your selected charity. Amazon will donate a portion of your purchase to our foundation.
March 25, 2018; the start of the An Ras Mor - a 5K race through Cambridge.
The Somerville Road Runners sponsor the race and donate part of the proceeds to the JLK Sanfilippo Research Foundation.
Thank you Somerville Road runners.
Three elite runners from the An Ras Mor